Check out this great website by another mum with a child like mine:
www.1q21-1microdeletionsyndrome.weebly.com
Hi, I'm a freelance journalist & mum of three. This blog is about my oldest child, Chrissy, who's 29, & has learning disabilities & complex needs. For years the cause of her problems was unexplained. Then 7 years ago we learned that she had a rare chromosome disorder - 1q21.1 microdeletion - & autism. We are on a very late learning curve! ....If you, too, have an interesting story to share I would love to hear from you. Find out more by clicking on my website....
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HI, my name is DeLona and recently a child was placed in our home who has 1q21.1 microdeletion. From the day I met him I knew there was ?something? about him. He was delayed in many areas, but it was more than that. I have a few questions that I hope you can answer. If you have a few minutes I would love to ask you a couple of questions.
ReplyDeleteThanks so much for sharing your life. DeLona. delonaglenn@gmail.com
Hi DeLona, Sorry, I've only just picked up your comment. (Now sorted out my settings so I get emails when someone comments!). I've dropped you a line. Only to happy to help :-)
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